Registry of Senior Australians (ROSA) Research Centre

Registry of Senior Australians (ROSA) Research Centre

The vision of the Registry of Senior Australians (ROSA) Research Centre is to guide evidence-driven decision making for quality, coordinated, efficient and age-friendly services and practices to improve the outcomes experienced by those accessing aged care.

ROSA is a national multisectoral integrated data platform designed to monitor and evaluate the health, service use, social welfare, medication use, mortality, and other important outcomes of >3.85 million people who received or are receiving aged care services nationally since 2002.

ROSA was established in 2017 by a collaboration of nine health, aged care, academic, consumer representative institutions including: South Australian Health and Medical Research Institute (SAHMRI), Flinders University, ECH Inc, Silver Chain, Bolton Clarke, University of South Australia (including SA NT DataLink), University of Adelaide, Council on the Ageing SA, and SA Health Office for Ageing Well.

    ROSA’s Objectives

    • Maintain a unique data collection with analytic capability to guide evidence-driven decision making for quality, coordinated, efficient and age-friendly services and practices;
    • Support the conduct of health and medical research to answer the questions of the aged care and health care sectors in relation to positive and healthy ageing;
    • Produce evidence for cost-effective service innovations, models of care and other solutions;
    • Enable the monitoring of the quality of ageing and aged care services over time;
    • Promote community engagement and inter-generational learning.

    What is ROSA?

    ROSA monitors the health, service utilisation, medication use, mortality, and other important outcomes of people receiving aged care services in Australia. ROSA’s efficient model leverages existing information, bringing together diverse national and state-based datasets throughout the country, to provide us with a whole picture of the ageing pathway.

    The ROSA Research Centre is based at the South Australian Health and Medical Research Institute (SAHMRI) and is supported through an academic partnership with the Caring Futures Institute, College of Nursing and Health Sciences at Flinders University. The ROSA Research Centre team members hold academic and affiliate appointments with the Caring Futures Institute, College of Nursing and Health Sciences at Flinders University.

    ROSA Cohorts

    ROSA Historical

    Established in 2017 and last updated in 2022, this cohort is a retrospective, national, de-identified cohort that includes older people in Australia who have accessed an aged care service or been evaluated for eligibility for aged care services.

    Integrated within ROSA Historical are the core datasets: Australian Institute of Health and Welfare’s National Aged Care Data Clearinghouse and National Death Index, Australian Government’s Medicare Benefits Schedule and Pharmaceutical Benefit Scheme datasets, Department of Social Services Data Over Multiple Individuals Occurrence, and the state-based hospitalisation, emergency department, and ambulance service records.

    This cohort contains 3,847,216 million individuals, of which 2,706,593 (70.4%) had an eligibility assessment. The state-based hospital and emergency department data collections included in the Historical Cohort currently include four Australian states: New South Wales, Victoria, Queensland, and South Australia - which represent ~86% of the cohort accessing aged care services nationally.

    ROSA Prospective

    Established in 2018 and last updated in 2023, it contains data for older people in South Australia’s who had an aged care eligibility assessment since April 2018. The ROSA Prospective cohort is prospectively enrolled through an opt-out consent process.

    Integrated within ROSA Prospective are the: Australian Institute of Health and Welfare’s National Aged Care Data Clearinghouse and National Death Index, Australian Government’s Medicare Benefits Schedule and Pharmaceutical Benefit Scheme datasets, and the state-based hospitalisation and emergency department.

    Between 2018-2022, 53,300 individuals were enrolled.

    Group Leaders

    • Professor Maria Inacio

      Professor Maria Inacio

      Director

    • Professor Gillian Caughey

      Professor Gillian Caughey

      Associate Director

    ROSA Partners and Support

    ROSA Governance Committees

    • Prof Caroline Miller (Chair; SAHMRI)
    • Prof Maria Inacio (ROSA, SAHMRI)
    • Prof Gillian Caughey (ROSA, SAHMRI)
    • A/Prof Odette Pearson (Wardliparingga Aboriginal Health Equity Theme, SAHMRI)
    • A/Prof Keith Evans (SAHMRI)
    • Prof Maria Crotty (Flinders University)
    • A/Prof Craig Whitehead (Flinders University)
    • Prof Julie Ratcliffe (Flinders University)
    • Prof Rebecca Golley (Flinders University, Caring Futures Institute)
    • Prof Susan Hillier (University of South Australia, SA NT DataLink
    • Ms Megan Corlis (Australian Nursing and Midwifery Federation)
    • Ms Miranda Starke (Council on the Ageing [COTA] SA)
    • Ms Kirsty Delguste (Office for Ageing Well, SA Health)
    • Ms Carolyn Dawkins (ECH Inc.)
    • Prof Karen Smith (Silverchain)
    • Prof Judith Lowthian (Bolton Clarke)
    • Ms Anna Sheppeard (Consumer Representative)
    • Ms Marilyn Von Thien (Consumer Representative)

    • Prof Gillian Caughey (Co-Chair; SAHMRI/ROSA Representative)
    • Marjorie Schulze (Co-Chair; Consumer Representative)
    • Anna Sheppeard (Co-Chair; Consumer Representative)
    • Marilyn von Thien (Consumer Representative)
    • Penelope Lello (Consumer Representative)
    • Irene Ashley (Consumer Representative)
    • Mario Corena (Consumer Representative)
    • Helen Radoslovich (Consumer Representative)
    • Bryan Morden (Consumer Representative)
    • David Everett (Consumer Representative)
    • Allan Smith (Consumer Representative)
    • Dr Victoria Cornell (COTA SA)
    • Dr Stephanie Harrison (ROSA Senior Research Fellow)
    • Dr Zuleika Arashiro, Federation of Ethnic Communities' Councils of Australia (FECCA)

    • A/Prof Odette Pearson (Chair) (Eastern Kuku-Yalanji and Torres Strait Islander)
    • Lesley Nelson (Whadjuk/Ballardong, Noongar Nation) (South West Aboriginal Medical Service WA)
    • James Atkinson (Yorta Yorta/Bangerang) (Aboriginal Community Elder Services VIC)
    • Kym Thomas (Nukunu) (Adelaide Rural Clinical School)
    • Antoinette Liddell (Wajarri/Yugunga‐Nya) (Adelaide Rural Clinical School)
    • Graham Aitken (Yankunytjatjara) (Aboriginal Community Services SA)
    • Lauren Aitken (Yankunytjatjara) (Aboriginal Community Services SA)
    • Renee Blackman (Gubbi Gubbi) (Aboriginal and Torres Strait Islander Community Health Service Brisbane)

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