SAHMRI Registry Centre

SAHMRI Registry Centre

SAHMRI greatly values registries as a source of translational and observational research. Well-designed registries, particularly at the population level, form the ‘third pillar’ of scientific research in conjunction with clinical trials and laboratory work.

Registry science

SAHMRI believes population-based studies founded on registries can represent the most reliable option for identifying the actual effects of treatments and outcomes in the general population.

The SAHMRI Registry Centre was established to widen the institute’s existing role in the registry space and to expand capacity and training in this area. The centre’s goals are to:

  • Provide the best resources for registry building capacity
  • Lead registry science through collaborative opportunities for our scientists
  • Develop strong international and industry collaborations
  • Continue to support a shared learning environment within our organization
  • Become a leading national and international registry centre.

The registries that are currently a part of the SAHMRI Registry Centre are listed below. The Registry of Senior Australians (ROSA), Australia & New Zealand Dialysis & Transplant Registry (ANZDATA) and Australian Orthopaedic Association National Joint Replacement Registry (AOANJRR) are all based at SAHMRI’s North Terrace Headquarters.

SAHMRI Registry Centre

The Registry of Senior Australians monitors the health, service utilisation, medication use, mortality and other outcomes of people receiving aged care services in South Australia. ROSA’s efficient model leverages existing information, bringing together diverse datasets collected by different organisations throughout the country, to provide a whole picture of the ageing pathway. ROSA produces evidence to guide decision-making for quality, coordinated, efficient, innovative and age-friendly services and practices.

Learn more about ROSA here

The Australia and New Zealand Dialysis and Transplant Registry (ANZDATA) is a clinical quality registry that collects and produces a wide range of statistics relating to the outcomes of treatment of those with end stage renal failure. ANZDATA has been in operation since 1977 and all dialysis and transplant services, in Australia and New Zealand, contribute data to the registry.

Learn more about ANZDATA here

The Australian Orthopaedic Association National Joint Replacement Registry is an initiative of the Australian Orthopaedic Association (AOA). The AOANJRR was established in 1999, becoming fully national in mid 2002. The purpose of the AOANJRR is to improve and maintain the quality of care for individuals receiving joint replacement surgery.

Information on hip, knee, shoulder, elbow, wrist, ankle and spinal disc replacement is collected from all hospitals in Australia undertaking joint replacement surgery.

Learn more about AOANJRR here